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Woman with 6,000 tumors all over her body made a stunning recovery

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A mother who was mocked for decades because of the 6,000 tumours covering her face and body has shared pictures of her incredible results from surgery.

Libby Huffer, 45, battles with neurofibromatosis, a genetic neurological disorder causing non-cancerous bumps to form wherever nerves are present.

She’s battled the stigma for over 25 years, after fibromas rapidly multiplied all over her body – causing chronic pain that meant even a hug would hurt her.

After sharing her plight, the mum from Fort Wayne in Indiana, USA, was offered specialist treatment to reduce the physical appearance of the disorder by TV Show The Doctors. S

he underwent her second electrodessication surgery June 2017 to kill off 1,000 of the ‘bumps’ on her face and the tissue causing the growths.

To lessen the scarring, she then had C02 laser surgery, which smooths out the skin and reduces the appearances of marks.

She’s noticed a ‘huge difference’ in her appearance since her surgery but hopes that others will be more understand towards people battling with Neurofibromatosis.

Libby, a photographer, said: ‘I am very happy with the results and hope to have the rest of them removed some day.

‘I have had about 1,000 of the fibromas removed so far. My friends and family say that I look great and they notice a huge difference.

‘My life hasn’t been any different since surgery other than I have raised lots of awareness for NF, which has always been my biggest goal.

‘There’s still a long way to go to heal the emotional damage I’ve undergone over the years, but I know that will only improve over time.

woman with 6000 tumors

‘The more surgeries I have, the more confident I will become and that will help to erase some of my painful childhood memories.’

Libby was a teenager, when hundreds of bumps caused by Neurofibromatosis 1 developed on her skin – the condition affects one in 2,500 people.

After the first outbreak she had a few hundred, but after falling pregnant with daughter Lindsey, now 23, her hormones caused the tumours to multiply into the thousands.

Strangers would stare, point and make horrid comments about her appearance, including that she had a ‘contagious disease.’

Libby said: ‘I have been bullied and victimised my whole life because of the bumps all over my skin, they cover me from head to toe.

‘In school kids would pick on me all the time, they called me lizard breath and toad.

‘I had to change my name from Elizabeth to Libby, because whenever I heard my name it reminded me of being called lizard breath.’

At their most prevalent Libby had nearly 6,000 tumours on her body that raised several inches above her skin.

Woman with 6,000 tumours all over her body makes remarkable recovery

woman with face tumors

She believes every aspect of her life was changed because of her appearance – from struggling to find work, day to day interactions and even finding love.

In addition to struggling to defuse people’s misconceptions about her condition.

She added: ‘The tumours all over my back cause chronic pain, the nerves in my feet have a tingling sensation all the time which make it hard to sleep.

‘They can even hurt from simple things like a hug or even if water from the shower hits them in a certain way.

‘But I’m not contagious I have a neurological genetic disorder that cause tumours to form on the both inside and outside of the body wherever there are nerves present.

libby and lindsey huffer

‘I am a human being too, all I want is to be adored and cared for like anyone else.

‘Instead of making comments, I wish people would talk to me rather than stare like I’m a circus freak, it just makes me feel really uncomfortable.’

Since revealing her battles with the disorder, Libby embraced her mantra ‘If we’re not seen, we can’t be heard’ and started the Facebook page ‘Faces of Neurofibromatosis’ to help unite others with the disorder.

She says the group has helped provide support and further awareness to sufferers.

Libby added: ‘You have to have NF or be the parent of a child under 18-years-old to be a member, everyone in our Family has NF or is a parent of a minor child with NF – everyone is wonderful and very supportive!

‘The page was created on 02/12/16 with only two members, myself and my mom – today my page is at 5,000 NF members worldwide.’

Libby and charity Neurofibromatosis Midwest, are fundraising to further educate the community, fund further medical research into the disorder and more.

She added: ‘We need to show the greater need for more medical treatment and Physicians for Neurofibromatosis.

‘The GoFundMe page is important to me as well as many others in our goal to raise more awareness and funding for NF research for a cure, treatments for NF, symposiums and workshops for Neurofibromatosis.

 

 

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Facebook’s WhatsApp limits text forwards to five user to restrain false news

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Facebook Inc’s WhatsApp (FB.O) messenger service company executives has stated their desire in globally limiting the number of times a user can farward a message to five, in a bid to fight “misinformation and rumors”.



Victoria Grand, vice president for policy and communications at WhatsApp, said at an event in the Indonesian capital, “We’re imposing a limit of five messages all over the world as of today.”

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Previously, a WhatsApp user could forward a message to 20 individuals or groups. The five-recipient limit expands globally a measure WhatsApp put into place in India in July after the spread of rumors on social media led to killings and lynching attempts.

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WhatsApp, which has around 1.5 billion users, has been trying to find ways to stop misuse of the app, following global concern that the platform was being used to spread fake news, manipulated photos, videos without context, and audio hoaxes, with no way to monitor their origin or full reach.

The app’s end-to-end encryption allows groups of hundreds of users to exchange texts, photos and video beyond the purview of independent fact checkers or even the platform itself.

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Credit to Reuters for confirming the development through WhatsApp’s head of communications Carl Woog, stating that WhatsApp will roll out an update to activate the new forward limit starting Monday. adding that Android users will receive the update first, followed by users of Apple’s iOS.

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R.Kelly cut off by Sony music over alleged acts of sexual abuse

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Chicago-born singer, R. Kelly has parted ways with Sony Music and its subsidiary label, RCA Records, amid controversies surrounding his alleged acts of sexual abuse.




The controversial singer, who is facing different allegations of abduction, sexual abuse and exploitation, was dropped by the record label on Friday.

R. Kelly was removed from the RCA Records website, whose parent company is Sony Music.

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This new development comes in the wake of calls and petitions from members of the #MuteRKelly movement, who have been pestering the record company to part ways with him.

The calls intensified in the wake of the documentary ‘Surviving R. Kelly’ in which multiple women accused him of sexual assault.

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This month has seen previous collaborators like Lady Gaga, Chance the Rapper, and Phoenix, all condemn R. Kelly and remove their collaborative songs from streaming services.

The documentary ‘Surviving R.Kelly’ is in six parts and gives detailed explanation into the history of allegations against the 52-year-old superstar.

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